Medicaid Waiver Dataset: Coverage for Childless Adults and Parents, 1996 – 2014. Version 2.0.
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This data collection identifies the presence and characteristics of Medicaid coverage for adults with and without dependent children for each state in the U.S. and the District of Columbia between the years of 1996 – 2017 (excluding eligibility based on disability or pregnancy).
DescriptionData Collection Objective: The objective of this data collection project was to identify the presence and characteristics of Medicaid coverage for adults with and without dependent children for each state in the U.S. and the District of Columbia between the years of 1996 – 2017 (excluding eligibility based on disability or pregnancy). This dataset draws heavily from the 50-state survey of Medicaid and CHIP eligibility, enrollment, renewal and cost-sharing policies collected annually by the Kaiser Family Foundation’s Commission on Medicaid and the Uninsured since 2000. Several other sources were also consulted to construct this dataset, including: 1) section 1115 Waiver Demonstration documents from the Centers for Medicare and Medicaid Services; 2) state government documents and reports; 3) peer-reviewed journal articles; and 4) a range of local news articles and reports. To obtain and review documents for earlier years that have not been digitized, we conducted onsite data collection at the Centers for Medicare and Medicaid Services (January 2016). The specific sources from which we collected the data are listed at the end of this document by state. There are two versions of this dataset, simplified and annotated. The simplified dataset includes data elements only without textual explanations or references. The annotated dataset includes the simplified dataset and additional text fields to facilitate interpretation and use of the data. Importantly, for each data element there is a corresponding “source” field in which we identify the source from which the value of that data element was obtained. Sources are identified using a labeling convention indicated at the end of this document. A unique identifier for each state-year-program is common to both the research and annotated datasets to enable researchers to locate the reference for a given data element from the research file in the annotated file. Overall, the dataset is comprehensive and includes even the most limited Medicaid programs (e.g. premium assistance for small employers of low-income adults). Further, income eligibility is often given for a specific point in time, rather than for the entire year. Thus, we recommend that data users review the annotated dataset to interpret and/or transform that data to best meet their needs. We anticipate updating the dataset and documentation and welcome corrections or additions.
DepartmentPublic Service and Administration
Kasper, M; Dague, L; Burns, ME (2023). Medicaid Waiver Dataset: Coverage for Childless Adults and Parents, 1996 – 2014. Version 2.0.. Available electronically from