Assessment of Health-Related Quality of Life Between Informants and Parent-Child Informant Report Discrepancies with Regard to Domains of Functioning Among Children with Functional and Organic Gastrointestinal Disorders
Abstract
Literature in Pediatric Health Psychology has traditionally had a focus in Health-
Related Quality of Life (HRQOL) and HRQOL has been established as a standard
measure to assess for functioning in children with pediatric chronic health conditions. In
addition, a focus on Pediatric Gastrointestinal Disorders (GIDs) has emerged as a focus
as well due to the high prevalence in children and the variety of ways they manifest. As
assessment of HRQOL often includes child self-report and another informant report (e.g.
parent proxy-report), a variety of previous research has taken interest in how well
children and parents agree and disagree on HRQOL. Given parent-child agreement and
disagreement/discrepancy has been shown to vary as related to domains of functioning,
the present study assessed for levels of discrepancy as related to easily observed domains
and domains less easily observed of HRQOL in a sample of children with GIDs.
Findings support higher parent-child discrepancies for difficult to observe domains as
compared to domains easily observed. Furthermore, additional analyses included
assessment of discrepancy and average HRQOL as related to age, gender, and informant.
Citation
Aguirre, Vincent Phillip (2018). Assessment of Health-Related Quality of Life Between Informants and Parent-Child Informant Report Discrepancies with Regard to Domains of Functioning Among Children with Functional and Organic Gastrointestinal Disorders. Doctoral dissertation, Texas A & M University. Available electronically from https : / /hdl .handle .net /1969 .1 /174603.