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Ongoing and Emerging Issues in Privacy and Security in a Post COVID-19 Era: An Environmental Scan
(National Committee on Vital and Health Statistics, 2023-03-22)
Information privacy, confidentiality, and security continue to be issues of national importance. In the last four years, there have been substantial developments in law, legal theory, data analytics, privacy preserving ...
Developing and Testing Software for Linking Patient Data from Multiple Sources
(Patient-Centered Outcomes Research Institute (PCORI), 2022)
Background: Comparative effectiveness research (CER) and patient-centered outcomes research (PCOR) routinely use secondary data (eg, insurance claims, health records). Leveraging secondary data requires effective and ...
Review of Federal Access Policies for National Syndromic Surveillance Program Data: Findings and Implementation Strategies
(Council of State and Territorial Epidemiologists, 2023-02-23)
The current National Syndromic Surveillance Program (NSSP) data use agreements (DUAs) prohibit CDC from conducting surveillance at the state or local level. Instead, default access for CDC NSSP staff is limited to HHS ...